So the following day, he had a GA (general anesthesia) for his MRI (magnetic resonance imaging) to see if there’s something in his brain. Sadly, can’t get inside the room for its just exclusive for the neurologist, nurses and other personnel. During the afternoon, he had another EEG. But I didn’t permit them to wrap my bb like a BORITO. I asked them if my bb’s left arm can possibly be out so that he could hold his security gloves and suck his thumb. It was then, my bb was very calm. Even the flashes of the EEG didn’t affect my bb which was very much different from the first time they did it.

To sum up, they couldn’t find anything on the MRI and the EEG results. For the very reason why my bb was having seizures was the dehydration. And that he only needs dextrose and other medicine to stop his LBM.

Right now, my bb is still recovering from all of the things he experienced for the week. I can’t leave him alone since he’s still very weak and seems he’s back in learning how to walk. I’m hoping all the injections didn’t affect him and the seizures didn’t affect his nerves. For sometimes, he’s acting weird, like an abnormal bb.

And I’m really phobia with all of those things. Whenever, I see my bb starts to curl his hands and bend his neck with different shape of his mouth, I would hug him immediately at the same time, giving him some gloves which are his security.
Hope he can recover soonest. He’s eating pretty well. Though, I need to trick him so that he will drink more fluid.

To this minute, I’m still afraid, worried, and paranoid with all the things I’ve been through. It’s really different and very much difficult when the one who has illness is my bb compared to just watching the baby of other people wherein I can run if I don’t want to witness sickness. But with my own bb, it’s really hard and painful seeing him in pain. SAD!

I don’t know! I’m still confused with the things that I’ve been through for the past few days. I thought I’d lost my bb after he had his LBM. He was dehydrated and was having seizures (3 times). I can’t even dial 911 with his first seizure at home. I was just crying and try to give him some air to breath. I was trying to resuscitate him. I didn’t know if I did the right thing or whatever, as long as I can give him air to breath. I was really crying a lot. It was scary. And when we reached the ER, he was having another seizure. He was really dehydrated. He had LBM more than 20 times plus vomited twice.

I know what my bb needs. He just needed some dextrose to replenish the fluid in his body. But the doctors wanted to know the cause of his seizure. When in first place, his LBM and vomiting were the cause. They get some blood samples from him, but forgot to scrape the poop from the towel I used to cover him in going out from the house to the 911 ambulance. It was Monday that they were looking for some samples of stool from him. But I can’t extract one for he wasn’t eating anymore and his LBM stopped. He was just relying on the dextrose for nourishment. If they just scrape the stool from the towel, perhaps, they will know the cause of the vomiting and LBM which was the main cause why my bb was dehydrated and having seizures.

When they are concern with the dehydration of my bb, they are more concern with his seizures. They even requested EEG (electroencephalogram) for my bb. With the first EEG, he was having 3rd seizure because he wasn’t able to absorb lots of fluid yet from the dextrose. He was still in pain (tummy pain, butt-pain, etc) plus he was still confused with all the things around him. The worst was they were wrapping my bb like a BORITO so that he can’t grab the wires that were attached on his head (25 wires).

With the 3rd seizure of my bb, I was really crying out loud. I didn’t care whoever hears me or whoever sees me. And the worst, I hear somebody (one of the doctors) said, it’s epileptic seizure. So that’s why, the Pediatrician suggested that my bb needs to have injections to stop his seizures and she requested for an MRI. She then, referred me to a primary neurologist. And early morning the following day, I was able to talk to the neurologist and he requested for MRI and another EEG to see what’s really going on with my bb (why he had seizures).

But I was wondering why they requested for another EEG. It was then the student nurse said to me, that they want to capture another seizure from my bb. But how can they capture one, if my bb was really having a seizure (epileptic/whatever) when they injected some medicine on him to stop the seizure if my bb really do have seizures with different cause besides the LBM/vomiting? They said, after the injections, my bb will not be having seizure again, and they wanted to capture one? How could it be?

TLC's Haven - Personal | March 1, 2008